Tuesday, 6 November 2012

Relapse...again :-(

Well I'm sitting here recovering from a relapse...again.  But this one is the worst I've had in about 10 years.

The best way to explain what has happened is to explain how MS works.  MS is an auto-immune disease meaning that the white cells which normally protect you from infection get all confused and start attacking my own body.  They 'nibble' at the myelin coating surrounding the nerve fibres in my brain and cause all of my symptoms.  The myelin is like the plastic coating on the outside of an electrical wire.  When its damaged the electricity can escape and cause all sorts of problems.  The same thing happens to my nerve impulses when the myelin is damaged.

Anything can set of a relaspe, particularly and infection or bug.  I had my flu injection (which I need due to my suppressed immune system) and I'm sure that what set this relapse off.  Because I'm no longer on Tysabri and have no MS disease modifying drugs in my system, my immune system is basically having a party and having a good old nibble.

I've been to hospital for 3 days to have a 3 bags of steroids put into me.  That meant having a canula in my hand for 3 days and not being able to sleep.  On top of the trips to the hospital and the relapse, I think I've had a bug too as I threw up for a week and couldn't keep anything down.  The doc eventually gave me pills for morning sickness and they did the trick.

I'm still very weak and exhausted and just can't be bothered with anything.  To make matters worse I've had a birthiday in amogst all of this and I've not been able to see Jo as she's had a cold and we didn't want to tempt fate.  So my pressies are still with her.  Hopefully I'll get to set her on Saturday and have another birthday!!

Anyway roll on next Monday as I start my new medication, Gilenya.  I'll be in hospital all day for monitoring but at least I'll be with a Justine who I met while we were having Tysabri.

Apologies for this being a long, wordy post but I thought you might like to know whats going on.

2 comments:

Janet said...

Poor you, Jill. I am so sorry you are having such a hard time. I do hope this new drug will help you to feel better. I have had a nasty bug recently that has knocked me off my feet. I can only imagine what it has done to you, if you have had the same thing. Thinking of you and happy birthday!

Janet xx

Dawn said...

I am mortifiled I haven't popped by sooner. I hope your feeling better hun. It all sounds bloody awful and I hope your now away from hospital and feeling some what normal.

How rubbish to have a birthday among all that and not be able to enjoy it. Make sure you give me your adress and I will send you a little gift to cheer you up.

craftydawn@gmail.com

And make sure you do lady ;0)

Love Dawn xx